So. . . I really have a lot to catch you all up on. Here we go:
The last time I wrote was in March. Almost six months ago and so much happening, I will try to remember it all. As you know I am a Girl Scout leader for Cassidy's Girl Scout Troop. As third graders, our troop was responsible for the Me and My Pal Dance. Our theme was "A Knight to Remember." We decided that we would include a catered dinner with the dance which made for more work, but it was so worth it. The dads/pals were dressed in suits and the girls all wore very beautiful dresses. Cassidy went with our next door neighbor, Jim. She had a blast. The dance was a huge success and the food was great. The other leaders and I worked very hard on making the dance fun. It was a blast watching all the girls, dads, pals, and other leaders dancing to the Cha-Cha Slide. Very funny! As much fun as we had, I am very glad that we do not have that responsibility next year. :)
I am also on the Cub Scout Committee for the boys. Chris only has one more year as a Cub Scout and then he plans to go onto Boy Scouts. (Not sure what I will do in the Boy Scout troop to help.) Barry has a couple more years before we get to that decision. Anyway, I am in charge of the Cub Scout scrap book. I am going to pass it on to another mom when Barry is done with Cub Scouts. I love to scrap book so I do not mind the job at all. The only problem I have is that I do not have enough pictures, but I will remedy that when ever I can. I am also responsible for setting up a summer activity for the Pack. The past two years we have had the pack at my mother's house to see the airshow and have a picnic. It made for a long, but interesting day!
All three of my kids went to Twin Lakes Camp this summer. Cassidy had the same counselors as last year, so she was very excited! Barry and Christopher were in the same cabin only because it was Barry's first year at camp. (Next year they will be in separate cabins.) They all had a really good time. They got to stay at camp for a couple of extra days because my alarm did not go off. I was not a happy mommy when I woke up. My mother ended up driving down to pick them up for me because I had to get everything ready for the Cub Scouts to come enjoy the airshow. Next year my neighbor's and mom are all going to call to make sure my alarm gets me up. :)
In April, Cassidy was sick with pneumonia again and she was in the hospital again! She was in for about 4 days, absolutely no fun. This time she decided that she was old enough to be there alone at night. My family doctor finally said he was going to start doing the tests that needed to be done that the allergist/pulmonary doctor would not. We found that she is very highly allergic to dust mites. (Fun right? You cannot avoid those things!!)
My sister Maria got married this summer in Denver. Most of my sibling met in Vale, CO before the wedding at my cousin Anna's house. (Beautiful house!!) We had a great time. We went white water rafting which was a blast. However, Cassidy decided to get sick again. We went to the ER on Thursday (before the wedding). The doctor sent her home with oxygen and said hopefully when we went lower down the mountain to Boulder, she would do better. She did a little better on Friday during the day, but she had a horrible time Friday night. I took her to the Rocky Mountain Urgent Care, where they gave her three back to back double breathing treatments. When the third one was done, her pulse-ox was still 77, so of course that meant we were on our way to the ER. When we got to the ER, they were really busy. They were telling all the people waiting that it would be a while before they were seen. I went to the counter with Cassidy and told them where we started and what was going on with her and the nurse did not believe that a girl that looked as good as she did could be that bad, but he took her back to the triage area and saw that her pulse-ox WAS 77. They took her straight back. We were in the ER for about two hours. Then Cassidy went upstairs. We were only in her room for about 5 minutes before the doctor came in and said we should probably go to the Denver Children's Hospital. We went two different ways. Cassidy was life flighted to the hospital in a helicopter. She got to see everything. She thinks it is cool that no one else in the family has ever been in a helicopter. The Boulder Hospital gave me a voucher to get to the Children's Hospital because everyone else was at Maria's wedding, so the trip did not cost me anything. Cassidy was in the PICU for 5 days. She got bad enough that they put her on a B-PAP. That is somewhat like the C-PAP that people who have sleep apnea use. She was unable to eat anything for two days because her breathing was so bad. She went to the regular floor and was there for 3 days. While we were in Denver the doctors tested Cassidy for everything from Cystic Fibrosis to HIV. All the tests came back normal. There are some other tests that can be done, but we will have to have them done in Indiana. When she was released the Children's Hospital, they gave us vouchers to fly home on Southwest Airlines. (My mother and the boys went home on Tuesday, while Cassidy was still in the PICU.) We flew home and our luggage ended up in Indy. Southwest got our luggage sent back and we got it back a couple of days later.
I have all the kids get eye exams every year. My eyes are horrible and Brad wears glasses also. Chris has been wearing glasses for about 3 years and Cassidy got them last year, but she does not need them all the time. This year the eye doctor saw that Chris's optic nerve was swollen, so we went to a neurologist on the 4th. Chris now has to have an MRI, EEG, and some other tests to see what is going on. The doctor thinks that he looks good, but she just wanted to make sure everything was good.
On the 5th, I took Cassidy down to Riley Children's Hospital to see a pediatric pulmonary specialist. After our latest adventure in Denver, I decided that we needed to get a different pulmonary doctor and allergist. Once that decision was made it was easy to decided to go to Riley's. Got a different medication that should work better than her old one. Dr. was happy with how much we are doing to prevent issues, but even though she looks healthy her lung function is not great. Therefore the new meds. We go back in a month. Hopefully we will get the answers to help keep her healthy.
